I'm back! First surgery to remove tumor in my pancreas is out of the way, now I'm just trying to recover. I got out of the hospital Sunday, July 21st. Below is a picture of me with my sister, Vickie, on the right, and my niece, Megan, on the left. See, I'm still standing!
Ok so about the surgery, they had to remove the head of the pancreas, and what's left may still be producing insulin. Tests are in progress to verify that one. Until we know for sure, it looks like I'm insulin dependent, which sucks. The good, terrific, absolutely fabulous news...they got all of the cancer! Thank you Dr. Flavio! It's been almost two weeks since the operation and I'm not doing so bad for an old chick. The stitches down the center of my body, and stopping above the waist line, were taken out last Wednesday. However there were some fatty tissues that were taking their sweet time to heal so since last Wednesday, and doctor's orders, I've had to pack gauze into a hole that to my eyes seems to be about 12-inches long. In reality it's probably about half an inch. Nasty. But it's getting better and I'm hoping that when I see my surgeon this Friday, I won't have to pack it anymore and the wound can get on with the business of healing. I'm taking short walks mimicking the pace of an 90-year old woman but hey...I'm getting out there again. My oncologist will want me to start radiation/chemo therapy shortly, and I will find out a bit more about that on Friday too.
Stay tuned. More to come on the saga that is currently my life. Take good care of yourselves!
Life is 10% what happens to me and 90% of how I react to it. –John Maxwell
Tuesday, July 30, 2013
Sunday, July 14, 2013
Poems of Encouragement by Roslyn (Ros) Mansell
THE UPSIDE OF DOWN
I'm bound for a place called The Upside of Down
It isn't a city nor is it a town.
It's a chink in the darkness where the light filters in
Or the hint of a smile turning into a grin
I'm searching and seeking Oh! Where can it be?
An astonishing find - it is hidden in me.
The Upside of Down is the yes side of no.
It's just round the corner I'm ready to go.
I'll get there much sooner if I don't hesitate.
Now is the time - before it's too late!
For the Upside of Down will not come into view
If I don't lift my head and decide what to do.
I'm bound for a place called The Upside of Down
It isn't a city nor is it a town.
It's a chink in the darkness where the light filters in
Or the hint of a smile turning into a grin
I'm searching and seeking Oh! Where can it be?
An astonishing find - it is hidden in me.
The Upside of Down is the yes side of no.
It's just round the corner I'm ready to go.
I'll get there much sooner if I don't hesitate.
Now is the time - before it's too late!
For the Upside of Down will not come into view
If I don't lift my head and decide what to do.
The Big Moment
Well, it's the day before the big surgery and I'm not going to play the heroine in this show. I...am...scared...to...death! But...this surgery is the only way to cure pancreatic cancer so I'm also grateful in a big way that it is an option for me. Yesterday I woke up in a funk though. I'd pretty much decided I wasn't even getting out of bed, and stayed put until about noon, and then my stomach started growling. It was a reminder that Saturday was my last opportunity to eat what I wanted, so I got up and decided to put on my favorite bright yellow dress, and a little bit of jewelry with a red knit cap to cover my head. I hit the road and landed at Applebees for steak and fries, yummy, then two hours later I picked up a Big Mac meal from MickyDs -- oh yeah. I took care of some errands and then stopped at Fred Meyer's for some cookies. Somebody smack me! I'm out of control in a real feel good kind of way! I'm so good at bad eatin'.
No matter where I went I'd hear something positive, "love that dress!" or "I love what you're wearing from head to toe". Or sometimes I'd just get a thumbs up. It made me smile and my spirits lifted to the clouds.
I want to thank everybody who got me to this point. Love you to the moon and back!
You've gotta dance like there's nobody watching,
Love like you'll never be hurt,
Sing like there's nobody listening,
And live like it's heaven on earth.”
― William W. Purkey
No matter where I went I'd hear something positive, "love that dress!" or "I love what you're wearing from head to toe". Or sometimes I'd just get a thumbs up. It made me smile and my spirits lifted to the clouds.
I want to thank everybody who got me to this point. Love you to the moon and back!
You've gotta dance like there's nobody watching,
Love like you'll never be hurt,
Sing like there's nobody listening,
And live like it's heaven on earth.”
― William W. Purkey
Thursday, June 27, 2013
Remember Fabio?
Did I ever mention that I was once an active member of the Romance Writer’s of America ? I know right? You had no idea I was someone of celebrity status. I even completed a novel, which was submitted to several publishers, rewritten based on constructive criticism and then buried in a box somewhere and forgotten. What I’m getting at is, at that time, a face graced the covers of most romance novels that was beyond gorgeous. He was the Greek god of men, all chisseled and yummy, Michelangelo's David, a love starved housewife’s fantasy of all fantasies; he is Fabio Lanzoni. To this day, even the name makes my heart skip a beat or two, and at my age, I can’t afford that kind of excitement anymore. But that’s beside the point, and because I don’t take short cuts when telling a story --‘cause I don’t want to take the chance of omitting a whole lot of drama -- I have to take you around the world and back before making my point.
I had my last CT scan and chest x-ray yesterday. While sitting in my surgeon’s office waiting for him to enter and give me the news that 1) I will either be moving on to having the surgery that would fix me, or 2) they can’t fix me quite yet or perhaps never and I may have to have ongoing treatment to extend my life and/or to make me comfortable.
So I wait, and wait…then in walks a young woman who introduces herself to me with a name I fail to remember. I smile patiently and shake her hand (I think I shook her hand). She sits down and asks me questions about my current meds. I'm thinking, I was just in Dr. Picozzi’s office a week ago and they reviewed my meds which they have on the computer. I’m frustrated but trying not to let it show. She asks me how I'm doing. Just fine, I answer. She asks me where I live. In Tacoma , I answer. It’s all in the records! We talk about Tacoma . We talk about the exact location of my home and whether I walked, bussed or drove to my appointment. I know these are questions she has to ask but frankly I want to know whether I'm going to have a chance at life, and her questions are making my bottom lip droop. She is obviously stalling, and inside my spirits drop. She pulls up the results of the blood draws I took only an hour before and went through them. Then she brings up my CT scan and chatters some more, and seriously I can not recall the words that came out of her mouth because none of them sounded anything at all like all is clear and we will proceed with the surgery. She clarifies that the tumor had shrunk slightly from the chemo. Slightly? Was slightly good enough? My heart plummets. I could barely speak these words. Will I be able to have the surgery? She stands up ending what I feel has been an interrogation, and explains that she will need to review the CT scan with her boss (a.k.a. the surgeon), and will be back shortly. It’s weird that your heart can continue to beat even when you feel that it has stopped completely. She didn't answer my question, which I thought I asked out loud.
So I wait. What seems like an hour, but in the real world is probably only a few short minutes, in walks the assistant and my doctor. He smiles. A lot. He extends his hand to me and I grab hold, desparately, like I'm drowning and he's pulling me to safety. I have to say he’s one of the most jovial doctors I’ve ever met (besides my wonderful Dr. Picozzi that is). He sits down and his next words work magic on my heart like it’d just been resuscitated. “So,” he says all happy-like. “Looks like we’re ready for surgery.” I’m not sure if that is an exact quote, but hey…it’s my best recall after just being shocked back into life. I’m going to have the surgery. He then shows me a picture of what my insides look like, said they will cut here, move something over there, wrap around here…um…let’s see…cut some vessels and rebuild them…(yikes!), whole thing will take about 8 hours. Okay, now I’m back to being terrified, but in a good way because they are going to try and fix me. I can still be fixed.
The doctor asks me if July 12th works for me, and I tell him yes, like I'd have something better to do than have a procedure that could save my life. He smiles all nice and happy as if the surgery he’s going to perform on me is easy-breezy, which makes me feel better, and left the room.
So there you have it. Oh wait, there was actually a point to why I brought up all that romance stuff, and the great Fabio. My doctor’s name is Flavio Rocha. Yes, I have Dr. Picozzi, the pancreatic cancer rock star of oncology doctors, and Flavio Rocha, the Fabio of all surgeons because he's as skilled as Fabio is rock star gorgeous. I’m in good hands guys.
Thanks for holding my hand over the last six months. I couldn't have made it without you!
P.S. Sorry for making you read all of this. LOL. Not sorry.
Tuesday, June 25, 2013
Remember Who You Are
I know the fear within you aches
It captivates your mind
But I know you have what it takes
Though you fear you're walking blind
But walking blinds a good thing
Walk by faith and not by sight
With faith you can conquer anything
But the void of faith is fright
Remember, you have nothing to fear
This battle is God's fight too
And He's never lost a fight, my dear
So why would he start with you?
Remember the Warrior you are
The leader of them all
God heard our war cries from afar
And now beside us he's fighting tall
God is with you now and tomorrow
And forever till forever's end
Please don't let life bring you sorrow
Because in God you've found a friend
Please listen to my words
Listen and hold them dear
God is Lord of lords
And with him, there's nothing to fear
It captivates your mind
But I know you have what it takes
Though you fear you're walking blind
But walking blinds a good thing
Walk by faith and not by sight
With faith you can conquer anything
But the void of faith is fright
Remember, you have nothing to fear
This battle is God's fight too
And He's never lost a fight, my dear
So why would he start with you?
Remember the Warrior you are
The leader of them all
God heard our war cries from afar
And now beside us he's fighting tall
God is with you now and tomorrow
And forever till forever's end
Please don't let life bring you sorrow
Because in God you've found a friend
Please listen to my words
Listen and hold them dear
God is Lord of lords
And with him, there's nothing to fear
Catlin L. Crawford
This poem spoke to my heart. It's easy to forget who you are when the face in the mirror no longer looks familiar.
Tuesday, June 18, 2013
A Little Bit More Detail About My Life - Monday, June 17, 2013
I had my last chemo infusion today. Now I have to wait 9 days for my last CT-Scan
on Wednesday to determine if the tumor has shrunken and whether it is now safe
to proceed to surgery. I’m not sure what
I’m feeling right now; happy at the possibility of moving forward to the next
step and a lot of scared stuff going on with moving on to the next step. I’m getting ready to see what I’m made of.
I know I need to be more positive, but understand me when I say this: considering what most cancer patients are dealing with and the fact that they haven’t taken an emotional and mental dive head first off the nearest bridge, we are making every effort to be positive and realistic every day. You can be both you know and still be okay.
After the silent auction ended, the dining room opened and we found our seats right smack in the front like we were superstars or something. That was nice. Dr. Picozzi, was sitting at the table with Patrick Swayze’s wife, Lisa Swayze, who was our guest speaker. Pretty cool. My mood was starting to lift a bit. My friend and colleague Kris and her husband soon joined us and I have to admit, my mood immediately shifted to a more positive place. A short while later Dr. Picozzi stopped by our table and leaned forward to say, “You have inspired me. Would you mind if I repeated something you said to me in my speech.” Seriously? How on earth could I possibly inspire this man? Of course I told him I didn’t mind and was kind of curious as to what I could have said that would inspire anybody. I was crying me a river before he was even 5 minutes into the speech. He talked about my “Circle of Love” which is how one of my colleagues described the posse that seems to always be accompanying me to my chemo appointments. He spoke about how important it is to be supported by family and friends through the cancer journey. And it is a journey, no doubt about that. I was so touched and blessed that I had been referred to such an amazing doctor by my friend Kris, and then later bamboozled into having him as my second opinion by my dear friend and colleague, Deborah. Because my initial appointment had been with the University of Washington and after that one I was emotionally bereft and not looking to go over everything else again with another doctor. My “Circle of Love” are without a doubt my champions. So I left the pancreatic gala feeling so much more positive than when I got there.
I also have to talk about the pancreatic seminar and gala
last Saturday and Sunday. I was feeling
pretty optimistic and looking forward to learning a bit more at the seminar about
what’s happening to me and the surgery to come.
Dr. Picozzi, my doctor, whom I’ve learned is the rock star of doctors
specializing in pancreatic cancer, was the first doctor introduced to
speak. He didn’t pull any punches. He explained how the issue of pancreatic
cancer was pretty daunting business. I
know he spoke to me over the last few months about statistics and survival rates
but I don’t think I was listening closely. I just wanted him to hold my hand
and assure me he was going to fix me up.
But I listened closely that day to everything he said. This is what I heard:
·
Pancreatic cancer is the most difficult cancer
to treat
·
Only 15% of pancreatic cancer patients are
operable i.e. the other patents are either not operable because the blood
vessels are wrapped around the tumor or that the tumor is sitting too close to
the major blood vessels to allow access to the tumor. The latter is where I’m at, which is why I’ve
been undergoing chemo therapy the last 6 months to shrink the bastard. On the good side, my chemo treatment seems to
be winning this battle for me because the tumor is shrinking.
·
25% of all operations for pancreatic surgery are
successful in removing all the cancer. Shit!
I sat in my chair pretty straight backed, which is highly unusual
for me because slumped is my usual style while pretending to listen, but this time I wanted to take everything in;
to pay close attention. And all the
while, I felt ice creeping up my spine and wrapping around my heart; squeezing the
hell out of it. It hurt to breathe. Have
you ever felt such a gripping and immobilizing fear? I have, with Mom, and then Kenny, and again
with Dad; at just the very thought of losing them. And now it's with me again.
By the gala on Sunday, my mood had slipped into a ditch but I
was relieved my sister Vickie and my niece Tamara were attending the event with
me. We were sitting at a table outside
the dining room waiting for the doors to open, while enjoying hor dourves and
beverage, when I looked to my left and saw we are sitting next to the In Memory
Of Wall honoring all of those brave patients who didn’t survive, ah damn…my heart
sunk even further. Just great. I know
you’re asking, why we didn’t just move.
To be honest, with all my wallowing, I just didn’t have the energy to
find another table. I have to say it…I couldn’t help wondering if
my picture would be hanging up there next year.
I decided to forgo taking the group picture with the survivors, I just
didn’t feel like I’d earned the right yet.
Man I was frickin’ downing in the black sea (I’m prone to a bit of melodrama
at times, in case you haven’t figured that out already), but my sister and
niece were laughing at silly stuff like I usually do, and commenting on the beautiful attire of
the other guests, absorbed in the festivities around us in spite of my doldrums,
which acted as my anchor of sorts. I
wanted to laugh with them but I just couldn’t seem to find any humor in
anything at that moment. But they kept me grounded, cause at times I was just 2 seconds from running out into the halls and screaming at the top of my lungs, "Oh my God I have cancer!" Not cool.
My niece Tamara, sister Victoria, and meI know I need to be more positive, but understand me when I say this: considering what most cancer patients are dealing with and the fact that they haven’t taken an emotional and mental dive head first off the nearest bridge, we are making every effort to be positive and realistic every day. You can be both you know and still be okay.
After the silent auction ended, the dining room opened and we found our seats right smack in the front like we were superstars or something. That was nice. Dr. Picozzi, was sitting at the table with Patrick Swayze’s wife, Lisa Swayze, who was our guest speaker. Pretty cool. My mood was starting to lift a bit. My friend and colleague Kris and her husband soon joined us and I have to admit, my mood immediately shifted to a more positive place. A short while later Dr. Picozzi stopped by our table and leaned forward to say, “You have inspired me. Would you mind if I repeated something you said to me in my speech.” Seriously? How on earth could I possibly inspire this man? Of course I told him I didn’t mind and was kind of curious as to what I could have said that would inspire anybody. I was crying me a river before he was even 5 minutes into the speech. He talked about my “Circle of Love” which is how one of my colleagues described the posse that seems to always be accompanying me to my chemo appointments. He spoke about how important it is to be supported by family and friends through the cancer journey. And it is a journey, no doubt about that. I was so touched and blessed that I had been referred to such an amazing doctor by my friend Kris, and then later bamboozled into having him as my second opinion by my dear friend and colleague, Deborah. Because my initial appointment had been with the University of Washington and after that one I was emotionally bereft and not looking to go over everything else again with another doctor. My “Circle of Love” are without a doubt my champions. So I left the pancreatic gala feeling so much more positive than when I got there.
If you have a family member that is going through hell right
now, please stand by them. Sometimes
they will not be on their best behavior and you will probably suffer for it, but
as hard as it is, don’t take it personally.
Because you love them so much, it will hurt you when they hurt. Unfortunately there is no way around this. On some days your loved one may say things about
that stuff down deep that resides with their fears, and pain, and sadness and
hopelessness…and you may feel yourself shutting down, and emotionally pulling away because let's face it, there is no pill to relieve the pain associated with watching someone go through this. Don't let it happen. This is what I felt and did when my brother was trying to talk to me about his impending death. I never verbalized that he shouldn't talk about it, I just shut down in my own way, but he knew. The thought of him dying was unbearable to me. I'm still adjusting to the painful reality I can't pick up a phone and hear his voice. Speaking soul deep does not take away from those times when they are more
upbeat or mean they are giving up…it just means that they are human and stuff unsaid can rot the gut if left unspoken. You may feel a strong desire to fix them by
tying a string of heartfelt words together for instance, don't say things like that, stay positive, try harder, don't give up -- random hallmark words that should be left on cards where they belong, because it is not always necessary that you provide feed back or what is needed.
Sometimes we just need you to listen. That’s all.
I’ve only just learned this myself.
Thanks for listening.
Sunday, June 16, 2013
Poem of the Day
This poem really moved me, because it reinforces what I've always felt. It's not the disease or the treatment that will defeat. It is the death of spirit. Everybody out there fighting for life, keep fighting. Easier said then done I know, because the fight can often be exhausting for sure. But time is definitely something worth fighting for.
Source: The Strongest Girl I Ever Knew, Inspirational Poem http://www.familyfriendpoems.com/poem/the-strongest-girl-i-ever-knew#ixzz2WP2NADw0
www.FamilyFriendPoems.com
The Strongest Girl I Ever Knew
In Loving Memory of Kelly Doe
She never got to dance,
Or go to her own Prom.
She never got the chance,
To forget where she came from.
She never got to kiss,
A man she idolized.
She never felt love's bliss,
'Cause she was paralyzed.
She never got to talk,
About love with a smile.
She never got to walk,
Down a Church's Aisle.
She never got to say,
Those precious words "I Do".
But she was far and away,
The strongest girl I ever knew.
She couldn't brush her hair,
Or put make up on her face.
She couldn't hold you dear,
Or give you a warm embrace.
She couldn't clasp her hands,
As if in the form of prayer.
She couldn't understand,
Why she was in a wheelchair.
She never showed her fears,
Or let you hear her cries.
She never showed the tears,
That fell down from her eyes.
She never looked for pity,
Or sympathy from you.
That's why she'll always be,
The strongest girl I ever knew.
By Ronnie Doe
She never got to dance,
Or go to her own Prom.
She never got the chance,
To forget where she came from.
She never got to kiss,
A man she idolized.
She never felt love's bliss,
'Cause she was paralyzed.
She never got to talk,
About love with a smile.
She never got to walk,
Down a Church's Aisle.
She never got to say,
Those precious words "I Do".
But she was far and away,
The strongest girl I ever knew.
She couldn't brush her hair,
Or put make up on her face.
She couldn't hold you dear,
Or give you a warm embrace.
She couldn't clasp her hands,
As if in the form of prayer.
She couldn't understand,
Why she was in a wheelchair.
She never showed her fears,
Or let you hear her cries.
She never showed the tears,
That fell down from her eyes.
She never looked for pity,
Or sympathy from you.
That's why she'll always be,
The strongest girl I ever knew.
By Ronnie Doe
Source: The Strongest Girl I Ever Knew, Inspirational Poem http://www.familyfriendpoems.com/poem/the-strongest-girl-i-ever-knew#ixzz2WP2NADw0
www.FamilyFriendPoems.com
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